That was a long night: 3 out of 5 down with tummy issues


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I knew one day it would happen. It is inevitable with three children. But I pray every night to keep our family healthy. I worry that a simple cold, flu or stomach aliment will land Bug and/or SB in the hospital.

Luckily it wasn’t the hospital but a stomach bug ended up forcing Diva, Bug and Hubs into a semi-state of consciousness staggering from bed to bathroom.

I decide upon myself to not share a marital bed with my husband. And try to save any healthy germs I had left. I slept on our very uncomfortable and severely hated sectional couch in the living room. Besides the constant moaning of the wall AC unit it left me utterly deaf. Which is a huge issue if your trying to listen for that stomach turning noise of vomiting children.

Finally, after the third sheet set change, I marched Diva into the bathroom and did what any good parent would do- made her a pallet and handed her a bucket with instructions. I prayed my little girl could get to one location or the other and my laundry was done for the night. But due to the jet noise the AC was now making I couldn’t hear her or get to her in time.

That was it. I drug all my sheets and blanket off the couch and myself a pallet in the hall next to her. I was afraid to sleep. Every time I tried, she got sick. And she was so sick she had no idea what was going on and therefore I could not expect her to aim. And just as she had been asleep restlessly for a hour, I laid down trying to ignore the pain my stomach was immering. The entire time I was sitting there rubbing her back I was staring at the mirror and trying to decide what nasty bodily fluid was smeared all over it at midget-like height. I then decided I didn’t care, but I needed to clean it. And then it happened. Right as I was standing up to grab the windex, Bug stumbles out of his room clutching his mouth and…. Yea my stomach is still weak.

Luckily SB slept threw it all and well Hubs, he spent his night on the floor of the master bath.

I will go to bed praying tonight that SB does not get sick. We have to be as the hospital at 6AM for her surgery. Sigh, this will be a long week.

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Hypogammaglobulinemia- Bless You. Do You Need A Kleenex?


Was that a sneeze? Or did you say something. If it was something was it even English? If it was English, what was it? Come again? Hypogammaglobinemiasupercalafragaliaticsosis…Um-diddle-diddle-um-diddleye. Um, yea, again? Hypogammaglobinemia. I couldn’t make that word up if I tried.

The first time I heard this word was on my birthday and I thought it was so sort of sick joke as the doctor kept repeating and spelling it over and over. She was telling me my son was diagnosed with hypogammaglobinemia. That was four years ago.

Backstory
Hubs kept telling me nothing was wrong with Bug and I was just overreacting. But mommy instinct knew better. At 18 months old I knew most kids his age were running around, climbing on chairs and devouring everything including crumbs on the floor. Instead our sweet independent little boy was sitting on the couch lethargic, feverish and devoid of appetite and personality.

I started keeping notes. He had fevers 6 out of 7 days a week. They ranged from 99 to 103 degrees. I repeatedly kept taking him in to the doctor; week after week. He kept losing weight but was otherwise “ok” by medical standards. Every test was ran and nothing raised red flags. They kept telling me it was the common cold.

Finally, his doctor agreed something wasn’t normal. At her suggestion I was to bring Bug to the doctor every time his fever was over 100. Every time. So we spent the next few months at the doctors continuously. She documented every appt and all tests ran.

Then one day it happened. The day that would change our life as a family.

Monday morning Bug woke up with a 101 fever and cough. I called in as normal and was told the soonest opening was the next morning. No biggie. Tuesday morning dawns and his fever is down to 99 and his cough are gone. I almost cancel the appointment but decide to keep it so she could document it. We walk in, check in and wait to be called. By now the nurses are alert to what’s going on and usually just pull us into a small room, preform his vitals and quickly asses if there are any tests that need to be ran. If everything seems like a cold, they send us on our way. But today was different.

And tomorrow I’ll continue how we arrived at a diagnosis that changed our lives and saved his.

The Moment When…


The moment when you hear the “barking seal”. We heard it all night. It never stopped, until of course I took Bug to the doctor this morning. Then he stopped barking and SB started wheezing. Is today Monday? Sure felt like it.

First it started with the “barking seal” cough all night. Then Hubs waking me up before he left to work out suggesting I take Bug in to the doctor. With Bugs medical condition his immune system is compromised. We have to take over-reacting decisions for him. This includes taking him to the doctor for the slightest cold. So I alert the kids to no school today, which sent their and my world spinning out of control. I am slowly gaining back control as we speak. But as I was trying to get the kids in the car, Bug tells me the car is locked. Enter mom freak-out moment now! Why? Because I leave my keys inside (don’t yell at me, I know its not smart. But it beats my kids walking off with them in the house). I call Hubs to calmly explain my frustration at him for locking my keys in (maybe calm is a major understatement). And then realized he left the spare set at home (GO HUBS!) so I was fortunate to get to the doctors on time. Then it started.

The kids started coming unglued. Running in the busy parking lot, throwing shoes at ceiling tiles, throwing bodies against the wall. All the while Bug was not coughing and SB was wheezing. It finally dawned on me this was because I changed the morning routine of not getting ready and going to school. But trust me, the doctors was not on my list either. Finally done with the doctors with a diagnosis of croup. We are sent home. They will not get Bug steroids because it will lower his already compromised immune system. So he needs to fight it off. Hoping that works. But what isn’t working is him acting like a complete lunatic. Finally I call Hubs up and ask him to take Bug to school. And Hubs calmly tells me he is bowling tonight and offers to bring me home a bottle of wine on his way home from work today. Smart man.