Therapy Thursday: Does Tricare Cover Pediatric Orthopedics?


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I’m on a new journey with one of my kids. One I have never been on. I thought we had been to every medical specialty there was; from allergy/immunology to oncology. So when we were sent to a pediatric orthopedist I was a little nervous. So nervous, I took along one of my children’s ABAs who could translate for me. My mind tends to go blank during appointments with all the information being thrown at me.

Tip: It’s not uncommon for me to break out my phone to voice record (with everyone’s consent). This way, when I recount the conversations to Hubs he gets a larger picture than just my memory (which we know is crap).

So here we are at a new specialty, with a new kid. But what had gotten us here?

Of course with two dx older siblings SB has been and is watched very closely. Not to mention her brother and sisters rare auto immune diseases; she is tested yearly. So it should have been no surprise when a doctor asked us if we had any concerns with SB; because he did.

Concerns? Well she almost died from RSV at a month old; spent a week in the hospital. She has now developed serious asthma. She didn’t make a sound until this past October, when finally Bugs ABA agreed with me I wasn’t crazy for my concerns and I took her in for a hearing test; which she failed. A month later she has tubes put in and has finally started making some words and nosies. She did the Army crawl for several months before she finally started walking late. Up until that point we always made the joke how she was born with toes that were perfect for sandals. There was almost a inch gap between her big toe and second toe. Little did we know what that physical meant for her.

When she stated walking we figured it out. In my dad’s generation it’s called “pidgon toed”. Nowadays, it is referred to as “in toeing” or tibia torsion Regardless of what you call it- it is where her leg bones below her knees are formed inward. So her knees and feet face in; causing pain, muscle weakness and muscle tightness.

So we (it is hard to get a 2 year old to do pt!) were given pt once a week for a hour at a time. I have seen a difference. However, one hour a week will not correct the problem. After seeing the orthopedic surgeon, she told us the answer was breaking our child’s legs.

Say what?!

Um, yea. Otherwise she said there was no option. Sorry! Don’t agree! And neither does the pt. We are now waiting on a second opinion to come through.

If you read the link you would see where they don’t suggest surgery until after age 8. We are going with these guidelines; however, due to the degree of her condition doing nothing is not an option. I’m sorry, but my parental intuition tells me something can be done to help (not cure) her. Currently she can’t walk up stairs, gets a few bloody noses and a multitude of bloody cuts from falling.

Lucky for us, we are surrounded by some amazing people. SBs pt went to a class last weekend and spoke about SB. There are options for us! We are very excited. Breaking our little girls legs just seemed, so, um, not right? I don’t even have words to explain it. The biggest question is- will Tricare cover it?

We were told by SBs pt that due to us at a peace time, they are more tighter on what they approve. Ehh?

I don’t have an answer. But what I can do it keep you all updated on what will happen. I will find out. And I will share my findings. Until then, wish us luck.

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DIY Butterfly And Ribbon Crib Mobile- As Seen On Etsy and Pinterest


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Since I like to make a lot of thing myself instead of having generic store bought items, I often find myself studying a item intently in order to break it down for construction.

While Hubs was away and I was preggers with SB, I had complete control of decorating the nursery. I never asked for his input since baby would be almost a year before he meet her (yes, you read that right!). So I spent many of pregnant induced sleepless nights stalking Pinterest for decorating ideas.

One of my favorites with this ribbon and butterfly mobile. It fit perfectly with the bedding I was reusing from Diva’s nursery. And since it was hand made and one of a kind, it was right up my alley to take on as my next project.

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Supplies

*Martha Stewart butterfly punch (these can be costly. So I waited for a coupon and got it half off. I also used it for other decor in her room)
*ribbon (different material, widths and color pallets)
*lace
*yarn
*white floral wire (found at floral section at Walmart)
*fabric (I used pink felt)
*fishing line
*paint chips
*hot glue
*eye hook

The nursery was in browns and links so when choosing my supplies I chose in that color scheme.

To make it more stable I would suggest using a wooden hoop you use for cross stitch. However, due to where we live we only have one craft store that didn’t carry them. So I went to Walmart and found the white floral wire. It works but doesn’t hold it’s shape as well.

I made two circles out of the floral wire. One larger than the other. I then took 4 pieces of the floral wire and spaced them out evenly, hooking one end to the small circle and the other end to the large circle. So when you lift the small circle, the large one is connected (since I did this over a year ago; I didn’t for see to take photos). I then attached for more pieces of floral wire to the small circle. I gathered the other ends of the floral wire into a cone and taped them with white tape. I made a small loop on the end to hang them from.

After that I just cut pieces of my ribbon, material, lace and yarn at about 3 inches each. And just tied a simple knot around the white floral wire. I did no pattern and tied it all extremely random. I wanted all the different materials to show, so I just tried not to group them.

After that I got to punching out my butterflies from the paint chip cards. I can’t tell you how many I did. But maybe 30.

I made about 7 “chains” of butterflies tied on a piece of fishing line. Since paint chip cards come with 3-4 order different shades of colors, I made sure I didn’t tie two of the same shade close together. On 7 of the chains I tied 5-7 butterflies. On about 5 chains I tied 3-5. I wanted to vary the lengths of chains.

After I punch and tied all the butterflies, I then tied the 7 longer to the top smaller circle. And the 5 shorter chains I tied to the lathers bottom circle.

I then took my 3 inch wide ribbon I purchased and hot glued 4 pieces along the 4 floral wires at the top I attached to hang. This hides the floral wire. I then created a cute bow and hot glued it over the hook I made to hide that as well.

Lastly, I screwed in the eye hook into the ceiling and hung up the mobile using the hook I created with the floral wire. Good thing is I know when I need to lower the crib mattress bc I find pieces of butterflies on her floor. So just make sure you hang it high enough to where baby can’t reach. And it beats the $60 kit on etsy you can buy.