Wordy Wednesday: ENT


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Many of us with special needs kids have visited the ENT at some point in time.
They deal with everything to foreign objects up kids noses to ruling out medical issues causing your precious not to talk.

We recently just visited them for the lader. I quickly had to educate myself on all the lingo since up until this point this was one of the few specialists my children had yet to visit.

I guess your wondering what ENT stands for, and if you already know, your probably waiting for the hysterical story I have to go with it; cause you know I do.

As defined by Webster’s, tells us the ENT stands for ears, nose and throat. So basically any reason beyond what your PCP (primary care physician) can take care of you would be referred to an ENT.

In our case, SB wasn’t talking. Well she was but it took her awhile and when she did it didn’t make sense. We knew Diva was delayed as well and like before, I knew the first step was to rule out an hearing issue. (tip: if you have concerns your little one isn’t talking on schedule or right, simply get a hearing test. Most insurances will cover it. Just call them before time and see what you need to do. We had to go to our child’s PCP and tell them our concerns.)

I was able to email my daughters PCP and ask her to put in a referral for a hearing test. Due to my daughters medical background she agreed it needed. Within a week we were in the audiologists office.

There were two types of tests they preformed. A tempatic and what I call the “bank vault” test.

For the first test they stick a ear plug thingy into one ear and take some readings. SB failed.

For the bank vault test they put you (dependent on the age and child) and the child in a bank like vault and close the door. Sorry to all you claustrophobic people. There is no sound getting in and out. Then they test at what decibel range your child can hear at. For SB they kept having to turn it up. She passed, but not in a acceptable range.

They told me to come back once a month every three months. This mama don’t play games. I immediately emailed her PCP again and said give me a referral to ENT. She did.

The next week we were in the ENT office and within 5 minutes had the surgery scheduled for her tube placement.

Yesterday, she had her tubes in. Last night she said “my shoes” or at least a variation of it. Proudest mommy moment!

She is doing great. But get very mad at the nurses after the surgery. Seems the only way she would stop screaming like a wild woman was to keep the Popsicles coming. They finally cut her off and had a little “come to Jesus” meeting with her. Kinda like a intervention with a addict. Shortly after she wouldn’t calm down and they were afraid she’d end up in the ER with head trama from throwing her body around like a rag doll. So we were discharged immediately.

That was a long night: 3 out of 5 down with tummy issues


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I knew one day it would happen. It is inevitable with three children. But I pray every night to keep our family healthy. I worry that a simple cold, flu or stomach aliment will land Bug and/or SB in the hospital.

Luckily it wasn’t the hospital but a stomach bug ended up forcing Diva, Bug and Hubs into a semi-state of consciousness staggering from bed to bathroom.

I decide upon myself to not share a marital bed with my husband. And try to save any healthy germs I had left. I slept on our very uncomfortable and severely hated sectional couch in the living room. Besides the constant moaning of the wall AC unit it left me utterly deaf. Which is a huge issue if your trying to listen for that stomach turning noise of vomiting children.

Finally, after the third sheet set change, I marched Diva into the bathroom and did what any good parent would do- made her a pallet and handed her a bucket with instructions. I prayed my little girl could get to one location or the other and my laundry was done for the night. But due to the jet noise the AC was now making I couldn’t hear her or get to her in time.

That was it. I drug all my sheets and blanket off the couch and myself a pallet in the hall next to her. I was afraid to sleep. Every time I tried, she got sick. And she was so sick she had no idea what was going on and therefore I could not expect her to aim. And just as she had been asleep restlessly for a hour, I laid down trying to ignore the pain my stomach was immering. The entire time I was sitting there rubbing her back I was staring at the mirror and trying to decide what nasty bodily fluid was smeared all over it at midget-like height. I then decided I didn’t care, but I needed to clean it. And then it happened. Right as I was standing up to grab the windex, Bug stumbles out of his room clutching his mouth and…. Yea my stomach is still weak.

Luckily SB slept threw it all and well Hubs, he spent his night on the floor of the master bath.

I will go to bed praying tonight that SB does not get sick. We have to be as the hospital at 6AM for her surgery. Sigh, this will be a long week.

Foodie Friday- Stuffed Green Peppers


A blast from the past: Stuffed Green Peppers Recipe

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We rarely use ground beef in recipes. Actually, we haven’t used ground beef in 5 years. No joke. We either use Italian sausage or ground turkey. It was all part of a “diet” one year and we just decided we couldn’t taste a difference and it was healthier. So why not make the change permanent?

We often prefer Italian sausage but it is a little more unhealthier for you. But some recipes just need the extra calories…er flavor (ground turkey seems to need twice the flavoring as it doesn’t hold the taste as well). The stuffed pepper recipe is one that requires the extra flavor in my opinion. Also I was searching for another recipe that could utilize the sausage I had in the freezer. This was the perfect fit as I also had the rice too. I only needed to buy fresh green peppers and tomato sauce. All the…

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Tricare/Therapy Thursdays: My Child is Diagnosed with ASD. Now What?


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When Bug got diagnosed with PDD-NOS I was completely ignorant to the types of therapy that might help him. I of course had heard of ASD and all its components, but I really didn’t know what there was in types of assistance to help them. My misinformation and misunderstanding was there were none.

I pictured a family with an ASD child like this:

Screaming child…everywhere. Screaming in the house, at the park, in every public location he went to. All his screaming was unintelligible (no, I did not think they were all stupid) because I thought not many of they could actually talk. I thought they went through life in a normal school environment just with the understanding that the child has ASD and there is nothing you can do for them; because there is no cure right? Then I pictured the parents and them crying every night after the child goes to bed because they are beyond tired, worried and stress. They are smelly (the parents not the kids) because they are so busy giving 24 hour attention to the ASD child, they don’t have time to take a shower. So they also have stock in Old Spice and Dove deodorant and their stock portfolio looks amazing. The parents are also so skinny they look like Ethiopian children because their intake of calories isn’t enough compared to the use of calories in a day chasing around an ASD child who can’t speak but sure as heck can run. Lastly, are the siblings. They are druggies, or don’t even live at home because they have run away. If they do live at home, they are never given attention and often are at the receiving end of the abuse from the ASD child, who can’t talk, can run and is violent when he can’t express what he needs; which is all.the.time.

After we got home from the doctors I looked at us and our home. No telling when Bug actually got ASD, but we looked average. I was over-weight, personally well taken care of. Our daughter was happy and healthy as well. Bug could tell us what he needed to a point and our bank account did not reflect income from stocks, since we didn’t even have a portfolio. So I waited. I waited for that shoe to drop. I waited for him to stop talking, for him to start running and for us to wither away to nothingness. But we never did.

Instead, Bug was given an IEP and started at a special education preschool. He thrived. He was the only verbal child in his class and because of that he was a amazing model for his peers. The doctors soon wrote prescriptions for therapy and the influx of therapists started entering our homes and our daily lives. I quickly learned what they all did in terms of helping ASD children. However, it took me some time to get it all down.

When faced with a new diagnosis, it is always overwhelming, even the second time around. With two ASD children, I felt in control and prepared when handed her diagnosis. But I wasn’t. I was less prepared actually. I quickly feel back onto Bug’s therapists for advice and help. And soon I was maneuvering the road down ASD again like a pro. So I thought I’d share some of the foundations of therapy that are often prescribed with a ASD diagnosis. Remember every child is different. I have two ASD children and besides them both receiving ABA, they receive different services.

OT– Occupational Therapists (OT) Autism Speaks describes OT as “brings together cognitive, physical and motor skills. The aim of OT is to enable the individual to gain independence and participate more fully in life”.

PT– Psychical Therapists (PT) “focused on any problems with movement that cause functional limitations,” as stated by Autism Speaks.

Autism Speaks lists speech – encompasses a variety of techniques and addresses a range of challenges for children with autism.

ABA (Applied Behavioral Analysis), to me, is the most important type of therapy a child with ASD can receive. Autism Speaks states that “Since the early 1960’s, applied behavior analysis, or ABA, has been used by hundreds of therapists to teach communication, play, social, academic, self-care, work and community living skills, and to reduce problem behaviors in learners with autism.”

All this information and more can be found by visiting Autism Speaks.

Tip{py} Tuesday – Clean that Purse Out


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I recently decided to change up a few things in my life; my purse. I’ve never been a big shoe girl, but I love having a nice purse. Since I tend to use them for years before getting a new one, I rarely clean it out. 

My normal is becoming a little to big as my life needs have changed and evolved. Hubs refers to it as the land craft carrier. So I downsized to a more manageable size for a while. It’s amazing how now all a sudden my arm is falling asleep as I carry my bag. Maybe it was a little to big. 

So while switching from one purse to the other, I ran into a wide range of items I didn’t need. Including size 2 diapers (she is 24 pounds!) and a pacifier (SB never used one). 

So here’s a little tip- while switching purses clean then out! Throw away the stuff you no longer need. An even better idea? Change purses more frequently to help escalate the need to keep a clean purse. Also gives you a great reason to get a new purse 🙂